Friday, February 29, 2008

This CMV will not go away

My CMV level has been low positive for the past three weeks. That might explain some the diarrhea issues that I have been having. They are going to put me back on the Ganciclovir for at least two weeks. The good thing is that I can do it myself at home. The bad thing is the cost - my insurance only pays 80 percent and the drug is expensive and the drug is rough on my blood counts (as will be the Gemzar).

Tuesday, February 19, 2008

My adrenal glands are not working

The test results came back today and my Adrenal glands are not working. This does explain the fatigue - or some of the fatigue that I am having. They have put me on Hydrocortisone. This isn't a high dose so I shouldn't have any bad side effects. Unfortunately there is no was to know how long I will have to be on this and if my Adrenal lands will start working again. It was due to the Prednisone that they stopped working.

Monday, February 18, 2008

Started Gemzar today

I started chemo again. We are trying Gemzar alone. It is possible that now that I have have the transplant my cancer may respond to this drug. In 2006 I took Gemzar with Navelbine. It was tough on my blood counts and took me 6 month to get through 4 cycles. It was right after this that I had a routine scan and my lung mets were found - so we don't think it worked the first time. We will try two cycles and re scan to see if it did anything. The people at NIH/NCI have seen some positive response with this drug post transplant.